The Palgrave handbook of disabled children's childhood studies / Katherine Runswick-Cole, Tillie Curran, Kirsty Liddiard, editors
- Machine generated contents note: pt. I Sharing Experience and Building Understandings -- The Texting Project / Sarah Manns -- The Tree of Participation: Our Thoughts About Growing a Culture of Participation Between Young People, Parents and Health Team Staff / Beverley Pearce -- "What Can I Say?" / Jamie Merchant -- The Heaviest Burdens and Life's Most Intense Fulfilment: A Retrospective and Re-understanding of My Experiences with Childhood Liver Disease and Transplantation / Sophie Savage -- My Sister, My World: From Second Mum to Nurse / Rebecca Whitehead -- Being a Disabled Woman and Mum: My Journey from Childhood / Jo Skitteral -- Going `Off Grid': A Mother's Account of Refusing Disability / Kim Davies -- pt. II Research Studies: the lives of disabled children across the globe -- The Social Relational Model of Deaf Childhood in Action / Kathryn Underwood -- `The Embodiment of Disabled Children and Young People's Voices About Participating in Recreational Activities': Shared Perspectives / Dawn Pickering -- Making Space for the Embodied Participation of Young Disabled Children in a Children's Centre in England / Heloise Maconochie -- Interrogating the `Normal' in the `Inclusive' Early Childhood Classroom: Silence, Taboo and the `Elephant in the Room' / Karen Watson -- The Kids Are Alright: They Have Been Included for Years / Ben Whitburn -- Expressive Eyebrows and Beautiful Bubbles: Playfulness and Children with Profound Impairments / Helen Potter -- My Friends and Me: Friendship and Identity Following Acquired Brain Injury in Young People / Marlene Sinclair -- Thinking and Doing Consent and Advocacy in Disabled Children's Childhood Studies Research / Jill Pluquailec -- pt. III Research Involving Parents of Disabled Children, Young people and Adult Children -- The `Disability Commons': Re-thinking Mothering Through Disability / Dan Goodley -- Intersectionality Theory in Research with the Fathers of Children with the Label of Autism / Joanne Heeney -- The Construction of Life Trajectories: Reflections, Research and Resolutions for Young People with Behavioural Disabilities / Tania Watson -- Personalisation Policy and Parents: The Formalisation of Family Care for Adult Children with Learning Disabilities in England / Barbara Coles -- pt. IV Ethics and Values -- Anonymity, Confidentiality and Informed Consent: Exploring Ethical Quandaries and Dilemmas in Research with and About Disabled Children's Childhoods / Liz Thackray -- Supporting Families in Raising Disabled Children to Enhance African Child Development / Tsitsi Chataika -- Normalcy, Intersectionality and Ableism: Teaching About and Around `Inclusion' to Future Educators / Elizabeth L. Chapman -- "Just Sumaira: Not Her, Them or It" / Sumaira Khalid Naseem -- pt. V Theory and Critical Ways of Thinking -- What's Wrong with `Special'? Thinking Differently in New Zealand Teacher Education About Disabled Children and Their Lives / Jude MacArthur -- A Diversity of Childhoods: Considering the Looked After Childhood / Kirsty Liddiard -- A Relational Understanding of Language Impairment: Children's Experiences in the Context of Their Social Worlds / Helen Hambly -- Resilience in the Lives of Disabled Children: A Many Splendoured Thing / Rebecca Lawthom -- Growing Up Disabled: Impairment, Familial Relationships and Identity / Brian Watermeyer -- Autistic Development, Trauma and Personhood: Beyond the Frame of the Neoliberal Individual / Damian Milton -- pt. VI Changing Practice and Policy -- Making Policy for Whom? The Significance of the `Psychoanalytic Medical Humanities' for Policy and Practice That Affects the Lives of Disabled Children / Harriet Cooper -- Disabled Children's Childhood Studies and Leadership as Experts by Experience' Leadership: Learning Activism in Health and Social Care Education / Barry Percy-Smith -- Being a Speech and Language Therapist: Between Support and Oppression / Anat Greenstein -- "You Say... I Hear...": Epistemic Gaps in Practitioner-Parent/Carer Talk / Katherine Runswick-Cole -- Disabled Children in Out-of-Home Care: Issues and Challenges for Practice / Karen Winter -- Easy Targets: Seen and Not Heard---The Silencing and Invisibility of Disabled Children and Parents in Post-Reform Aotearoa New Zealand / Rod Wills -- Family Voices in Teacher Education / Karen Young Lewis -- Rights Not Needs: Changing the Legal Model for Special Educational Needs (SEN) / Debbie Sayers -- Concluding Thoughts and Future Directions / Katherine Runswick-Cole.
- Disabled children's lives have often been discussed through medical concepts of disability rather than concepts of childhood. Western understandings of childhood have defined disabled children against child development 'norms' and have provided the rationale for segregated or 'special' welfare and education provision. In contrast, disabled children's childhood studies begins with the view that studies of children's impairment are not studies of their childhoods. Disabled children's childhood studies demands ethical research practices that position disabled children and young people at the centre of the inquiry outside of the shadow of perceived 'norms'.The Palgrave Handbook of Disabled Children's Childhood Studies will be of interest to students and scholars across a range of disciplines, as well as practitioners in health, education, social work and youth work.
- Bibliography Note:
- Includes bibliographical references and index.
- Endowment Note:
- Donald, Arlene, Matthew, and Christopher, and Mary Mai Berchtold Libraries Endowment for Students with and Studies of Learning Disabilities
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