Export to Refworks Export to EndNote Email
Report an Issue

Reconciling Genomics Advancement with Responsibility to Health Care Stakeholders Through Governance Standards

Author:
Gaddis, Allison Lynn
Published:
[University Park, Pennsylvania] : Pennsylvania State University, 2019.
Physical Description:
1 electronic document
Additional Creators:
Briscoe, Forrest and Schreyer Honors College
Access Online

Availability

I Want It

Finding items...

Restrictions on Access:
Open Access.
Summary:
The genomics practice is positively and rapidly transforming the health industry through human genome sequencing and individualized medical care, which is denoted as precision medicine. However, the large scale proliferation of human DNA data in genomic databases is raising new risks to involved individuals and their personal data. As precision medicine becomes more widespread, improved regulatory and governance requirements at health care organizations become all the more important in order to responsibly maintain the benefits and innovation derived from genomics. Health care organizations must adjust genomic database governance policies to enhance data responsibility features of data privacy, security, use, and accuracy without impeding the continuation of precision medicine. Through a comparative analysis of societal attitudes and a current genomic database governance structure used in practice, a balance can be found between genomics advancement and responsible organizational data management practices.
Other Subject(s):
Genre(s):
Dissertation Note:
B.S. Pennsylvania State University 2019.
Technical Details:
The full text of the dissertation is available as an Adobe Acrobat .pdf file ; Adobe Acrobat Reader required to view the file.
View MARC record | catkey: 27087611