Actions for Genetic Transparency? Ethical and Social Implications of Next Generation Human Genomics and Genetic Medicine

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Genetic Transparency? Ethical and Social Implications of Next Generation Human Genomics and Genetic Medicine

Author
Dreyer, Malte, 1979-
Published
[Place of publication not identified] : Brill, 2016.
Physical Description
1 online resource
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Series
Language Note
English.
Contents
Introduction / Christoph Rehmann-Sutter, Malte Dreyer and Jeanette Erdmann -- Christoph Rehmann-Sutter and Malte Dreyer -- Benedikt Reiz, Jeanette Erdmann and Christoph Rehmann-Sutter -- Angeliki Kerasiou, Cathy Herbrand and Malte Dreyer -- Teresa Finlay, Shannon Gibson, Lene Koch and Sara Toccheti -- Kirsten Brukamp, Gabrielle M. Christenhusz and Caroline Fündling -- Andrei Famenka, Shannon Gibson and Fruzsina Molnár-Gábor -- Gabrielle M. Christenhusz, Lorraine Cowley, Tim Ohnhäuser and Vasilija Rolfes. The idea of 'genes' and their 'transparency' / Making genomes visible / Who is the subject of genetic responsibility? / Personal genomics : transparent to whom? / Genetic transparency versus genetic privacy : the complex ethics of genetic testing in humans / Understanding the complexity of regulation in an evolving health technology landscape / Genetic transparency : transparency of communication
Summary
Genetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then - the authors of this volume claim - the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti.
Subject(s)
ISBN
9004311890 (ebk)
9789004311893 (electronic bk.)
9004306684
9789004306684 (hardback)
Bibliography Note
Includes bibliographical references and index.
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