Actions for A case for the use of project management methodology to implement data collection for a nationwide case-control study investigating sudden unexpected death in infancy
A case for the use of project management methodology to implement data collection for a nationwide case-control study investigating sudden unexpected death in infancy / Melanie E. MacFarlane
This case study describes how project management was used to implement data collection for the SUDI Nationwide Case-Control Study (2012-2015), which investigated sudden unexpected death in infancy in New Zealand. Sudden unexpected death in infancy is when an infant under 1 year of age dies suddenly, unexpectedly, and usually during sleep; New Zealand has one of the highest sudden unexpected death in infancy rates among developed countries. The main conduit for data collection for the case and control groups was the SUDI Liaison team, whose role was implemented nationally for the study and continues to this day. The SUDI Liaison team interviewed 96% (n = 132) of families that experienced a sudden unexpected death in infancy during the study period for the case group, and 40% (n = 258) of families were selected for the control group. The participation rate was lower than expected among controls and was identified as an emerging issue through the project's monitoring and control mechanisms. A change in approach was adopted. Project management approach provided a framework to implement and control this large-scale and complex study. Upon this framework, all project activity, governance, accountability, and decision-making were supported throughout the life of the project. The project management approach successfully drew together the workstreams and related activities necessary for the project's success into achievable and measurable steps.